My voice was heard ’round the world on World Sight Day 2017!

Thursday Oct 12, 2017 was World Sight Day. It was also the day of a special meeting at the US FDA. I was involved in both.   For World Sight Day, millions of people around the world shared their stories of living with blindness, teaching blind children, advocating for blindness related things, and more.  Retina International, an organization that has …

The Stress Regarding My Teen Trick-Or-Treating Was Not What You Think

Recently The Huffington Post reflected on the issue of teens trick-or-treating (read it here),  which was prompted by a post on Facebook by Explore Talent (see it here)  In summary, there was quite a buzz over the past couple of weeks as to whether or not teens should be out trick-or-treating.  There were debates over age, dressing up, being required to say “trick …

Blogging rocked my mission… and I never even went viral.

Let me catch you up ever so quickly on how my “I am not a blogger” self got into this platform that rocked my mission: Seventeen years ago I was a teacher. Sixteen years ago my first born son was born blind. Twelve years ago my second son was born blind. Five years ago I started a non profit with moms like me to …

A RARE Experience… Times Two.

My two sons have a rare disease.  They are blind due to CRB1-LCA.  Their rare blindness affects only 300 children in the United States.  Only 300… it’s THAT rare.  Until my boys came into my life, I had never even met a blind person and I am not sure if I ever knew anyone with a rare disease. For the …