“From time to time we each encounter a struggle, a setback, that doesn’t exactly fall in line with our plans. I never planned on raising blind children. I never planned to launch a research organization. But I did face the challenges in front of me and learned how to not just survive, to thrive. It’s my turn to help others learn what I’ve learned.” Kristin Smedley
WATCH Kristin’s interview about her mission and upcoming book on the ASKBONBON SHOW
“Life is funny… sort of.” – Kristin Smedley
Kristin Smedley is an award winning non profit leader, speaker, and up and coming author but she never planned on any of that. Kristin did plan to be a really great third grade teacher, however her personal path to greatness took an unexpected turn when two of her three children were diagnosed as blind. She had to learn the tools of blindness and build a team of experts that would help her navigate this path that she had not been trained for. Kristin’s two blind sons are now thriving as gifted high school and middle school students, elected student council officials, baseball championship winners, International Braille competition finalists, and social butterflies.
In 2011, Kristin founded the Curing Retinal Blindness Foundation, the only patient organization in the world for her sons’ blindness, CRB1 LCA/RP. In less than five years Kristin has led the CRBF to raise over $1 Million, introduced the first ever legislation in the United States in Braille, and has moved rare eye diseases from rarely talked about to being discussed in key circles.
Kristin enjoys speaking about her journey and pointing out where she can find the fun in fundamentally challenging situations life delivers. Kristin’s inspirational and humorous style leaves audiences of all sizes wanting to hear more.
IN THE MEDIA
BEN FM Woman of the Week interview: Click for Podcast of the interview with Marilyn Russell
Interview with Bonnie Bruderer on THE ASKBONBON SHOW https://www.youtube.com/watch?v=uSWuAdKRAdo
Interview with NBC10 Phildelphia’s Vai Sikehema: http://www.nbcphiladelphia.com/video/#!/on-air/as-seen-on/Cocktails-for-the-Cure-Seeks-Help-With-Rare-Disease/249832131(Kristin’s charity event “Cocktails for the Cure”)
Segment 1 of 2 on FOX29 http://www.myfoxphilly.com/story/23543729/blind-football-player-impresses (Kristin’s blind son and charity event “Bike the Basin”)
Segment 2 of 2 on FOX29 http://www.myfoxphilly.com/story/23561697/teenager-hopes-to-find-cure-for-blindness# (Kristin’s charity event “Bike the Basin”
The Midweek Wire: http://midweekwire.com/2015/02/12/connecting-the-community-students-schools-and-library-rally-to-create-a-collection-of-braille-childrens-books/ (Kristin’s community Braille library project)
People’s Choice Award, Bucks County’s Biggest Mover & Shaker, Bucks Happening Magazine (2014)
Distinguished Citizen Award, Northampton Township (2013)