10 Tips to extend your reach of your Rare Disease community.

May 10, 2016

Blogging rocked my mission… and I never even went viral.

May 4, 2016

What a difference a day makes…

February 28, 2016

When my “piano man” had the rare chance to get up close to THE Piano Man…

February 23, 2016

When The Boss kicks off a 16 year old’s birthday, like a boss…

February 17, 2016

An extraordinary man inspires an ordinary life…

February 10, 2016

My blind boys appreciate beauty queens because of this…

February 5, 2016

No Surrender… Surrender… oh my…

February 4, 2016

Rock or Roll… a choice I had to make. (It’s not what you think!)

February 3, 2016