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Video: My two teens are Changing What It Means To Be Blind

“Your son is blind. He will never play baseball.  He will never drive.  Your hopes and dreams for your son are gone. Learn how to raise a blind child.  Good luck.”

That’s what the doctors told me when they delivered the diagnosis that my son has a rare eye disease called Leber’s Congenital Amaurosis (LCA).  One delivery of that news is about all a person can take – I got the news twice. Both of my sons have LCA.

My boys have shattered the bleak box they were put in – and they continue to raise the bar on people’s expectations of what blind kids can do… at 16 and 13 they are just getting started!

WATCH & LISTEN: the song is performed by my oldest blind son 🙂 You can follow more videos and posts regarding their journey at our little Facebook community, Thriving Blind.

Thriving Blind Academy!

Join the community with a vibe of THRIVE! Our mentors, live programs and online portal guide Parents of blind/VI children and blind/VI young adults and adults to create lives they are excited to live! 

the book thriving blind

Find out how Kristin went from crying on the couch over her two son’s diagnosis of blindness, to raising them to thrive! Download the Introduction chapter of Kristin’s Best Selling Book Thriving Blind: Stories of Real People Succeeding Without Sight. Click the button below!

Cover of What I Can Be IS Up To Me children's book

Get Kristin's NEW inclusive, accessible children's book, "What I Can Be Is Up To Me" is here! Pre-Order the book OR donate one to a teacher/family!

Kristin Smiling a huge smile with autumn trees behind her
About Kristin Smedley

Kristin Smedley is the Best Selling author of Thriving Blind: Stories of Real People Succeeding Without Sight and Brilliantly Resilient: Reset, Rise and Reveal Your Brilliance. A recognized expert in the blindness and rare disease communities, Kristin won the highly regarded Champion of Hope Award and was named an Ambassador for the National Organization of Rare Disorders. Kristin is a popular, in demand speaker who has been invited to share her message internationally.


As CEO of a global patient organization, she coordinated legislation (H.R. #625) that became the first in US history to be submitted in Braille. Kristin spoke at the FDA to help achieve the first ever FDA approved gene therapy to treat an inherited retinal disease in the United States. Her TEDx Talk, book and international summit change perceptions of blindness, and sparked a global movement, Thriving Blind Academy, that is solving the unemployment, literacy, and financial crisis in the blind the community.


During the COVID-19 pandemic, Kristin co-founded Brilliantly Resilient to help people come through life’s challenges and setbacks brilliant, not broken.