to an Extraordinary Journey
Life is funny… sort of. That’s how Kristin sees it! Kristin Smedley is an award winning non profit leader, TEDx speaker, and author – but she never planned on any of that. Kristin did plan to be a really great third grade teacher, however her personal path to greatness took an unexpected turn when two of her three children were diagnosed as blind. She had to learn the tools of blindness and build a team of experts that would help her navigate this path that she had not been trained for. Kristin’s two blind sons are now thriving as gifted high school and middle school students, elected student council officials, baseball championship winners, International Braille competition finalists, and social butterflies.
In 2011, Kristin founded the Curing Retinal Blindness Foundation, the only patient organization in the world for her sons’ blindness, CRB1 LCA/RP. In just six years Kristin has led the CRBF to raise over $1 Million, introduced the first ever legislation in the United States in Braille, and has moved rare eye diseases from rarely talked about to being discussed in key circles. READ MORE