An extraordinary man inspires an ordinary life…

363 ViewsNOTE: I am re-posting this entry from April, 2014 with an important update at the end: I know, this topic is a bit bizarre!  But my life is kind of bizarre that way… I used to seek out extraordinary people for my blind sons to meet so they too would be inspired to achieve extraordinary things.  Ever since my …

My blind boys appreciate beauty queens because of this…

259 ViewsI recently got some great news: the Miss America Organization is going to be supporting our upcoming Cocktails for the Cure event!  But before I reveal that awesome info, I wanted to share a post I wrote back in 2014 when we first were introduced to the organization: From my March 20, 2014 post: Recently my family and the …

No Surrender… Surrender… oh my…

246 ViewsWith all the energy and excitement surrounding the epic weekend we have planned for my oldest son (3 concerts in 4 days – see my post from 2/1/16), there is a LOT of music playing around our house… even more than usual!  Bruce Springsteen’s “No Surrender” was on recently and the chorus often sticks in my head: We made …

Rock or Roll… a choice I had to make. (It’s not what you think!)

430 ViewsI am sure folks will think the title of this post has something to do with the musical nature of our family… but it ironically doesn’t!  It is about a choice, an epic choice I had to make fifteen years ago…   Fifteen years ago I went to my first ever conference relating to my sons’ blindness, Leber’s Congenital Amaurosis.  At …

For his 16th birthday my son can’t get a driver’s license, so I did this…

2,280 ViewsTwo of my three kids, my boys, are blind.  Like, Braille reading  and white cane using blind.  My oldest son, Michael, just turned sixteen and all of his friends are turning sixteen as well… and all of their birthday celebrations include trips to the DMV for their learner’s permits and eventually… cue the dramatic celebratory music: the driver’s license. …