My blind boys appreciate beauty queens because of this…

61 ViewsI recently got some great news: the Miss America Organization is going to be supporting our upcoming Cocktails for the Cure event!  But before I reveal that awesome info, I wanted to share a post I wrote back in 2014 when we first were introduced to the organization: From my March 20, 2014 post: Recently my family and the …

No Surrender… Surrender… oh my…

54 ViewsWith all the energy and excitement surrounding the epic weekend we have planned for my oldest son (3 concerts in 4 days – see my post from 2/1/16), there is a LOT of music playing around our house… even more than usual!  Bruce Springsteen’s “No Surrender” was on recently and the chorus often sticks in my head: We made …

Rock or Roll… a choice I had to make. (It’s not what you think!)

183 ViewsI am sure folks will think the title of this post has something to do with the musical nature of our family… but it ironically doesn’t!  It is about a choice, an epic choice I had to make fifteen years ago…   Fifteen years ago I went to my first ever conference relating to my sons’ blindness, Leber’s Congenital Amaurosis.  At …

For his 16th birthday my son can’t get a driver’s license, so I did this…

1,096 ViewsTwo of my three kids, my boys, are blind.  Like, Braille reading  and white cane using blind.  My oldest son, Michael, just turned sixteen and all of his friends are turning sixteen as well… and all of their birthday celebrations include trips to the DMV for their learner’s permits and eventually… cue the dramatic celebratory music: the driver’s license. …

My Shocking Holiday 2015 Statement: I’m Dreaming of a Green Christmas…

52 ViewsI know I know, a Green Christmas? Who the hell dreams of a Green Christmas when they live in a part of the world where there is a strong possibility for a White Christmas?  With my apologies to Bing Crosby and all of you White Christmas fans, please read on…      Let me first say that I am …