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Video: My two teens are Changing What It Means To Be Blind

“Your son is blind. He will never play baseball.  He will never drive.  Your hopes and dreams for your son are gone. Learn how to raise a blind child.  Good luck.”

That’s what the doctors told me when they delivered the diagnosis that my son has a rare eye disease called Leber’s Congenital Amaurosis (LCA).  One delivery of that news is about all a person can take – I got the news twice. Both of my sons have LCA.

My boys have shattered the bleak box they were put in – and they continue to raise the bar on people’s expectations of what blind kids can do… at 16 and 13 they are just getting started!

WATCH & LISTEN: the song is performed by my oldest blind son 🙂 You can follow more videos and posts regarding their journey at our little Facebook community, Thriving Blind.

Discover How To See Differently

Hey, I’m Kristin Smedley. I help people see their fears and challenges differently so they can move forward in their purpose driven life.

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About Kristin Smedley

Before the birth of her babies, Kristin had never known a blind person. The boys’ retina specialist informed her family that both children would need white canes to navigate the world, and that neither of them would likely ever attend a normal school, pitch a baseball, drive a car or be able to secure a great job. With no idea how to navigate their needs, Kristin saw little hope for their future.

Nearly suffocating from her own fears, Kristin knew she needed to overcome the anxiety, worry, and obstacles for the sake of her sons, but she had no idea how to proceed. Yet, knowing that Michael and Mitchell needed their mother to fight for them, Kristin began advocating for the tools her blind children needed.

Discover How To See Differently

Hey, I’m Kristin Smedley. I help people see their fears and challenges differently so they can move forward in their purpose driven life.